I never quite know what I’m supposed to do on a day ‘celebrating’ such a dastardly disease - or perhaps it’s just for enlightenment, for awareness... not that I ever remember. When I told Mum it was World Lupus Day, she asked me, ‘So what are you doing for today?’ And I replied, ‘I am enjoying my life today.’
Which I am. I wore enjoyment in the form of colours, bright lime green nails and shoes, and a rope of beads around my neck, a craft present from my beloved Mary Haybittle - for rainy days with the twins - can't remember which twin made this particular one - and the nurses were very complimentary. Colour has that effect in hospital.
I pretended my NHS coffee was Real Cawfee and later, when I was free of the cannula, I took myself off to the Jubilee Garden for a few sunshiny moments.
Did I wear the beads, headdress style, at Sainsbury? Bien sur!
Here is a little video wave I made in the hospital garden, just to say hello 👋🏽